But, in reality, life's treasures are earned, worked for and sometimes suffering is a part of that. It wasn't difficult to fall in love with Nolan, that was the easiest part of this journey. And I thought it would be difficult for others to do the same, and well, that was totally not true either, everyone I encounter loves Nolan. Not because he has down syndrome. Because he is Nolan. He radiates love and acceptance. He makes people smile, all people. All of the time. Our kids are shy, both Jeremy and I were shy as a kid and well not so much anymore, but Graham and Audrey definitely. If you know our family, you are so happy when one of our children greets you with open arms, because it probably took 4 years of knowing them to do so. But, not Nolan, he runs and gives kisses and hugs freely. He fills everyone's love tank daily.
As I sat in the hospital bed with his new little baby scent and soft baby skin. It was perfect. It was all that I dreamt of. It was the world that I didn't want to take him into. I remember hiding him in my baby carrier, hoping no one noticed. Happy if anyone told me that he "didn't look like it". Now I cringe at those thoughts. Can't imagine being ashamed of my sweet boy. But, I wasn't. The world is. The world see's him as less than, and therefor we all do. That isn't right. Forget fair, forget politically correct. It isn't right. He deserves your respect and love and attention like any of our children.
Graham said to me this morning the first time ever that he just randomly brought it up, "If Nolan were regular (insert cringe here) would he like and be able to play Lego's?" First of all we talked about what 'regular' meant and then I said that yes, he would be able to and probably like Lego's. He then followed it up with, "I just wish one of the babies were 'regular'. So, I could play Lego's with them". I cringed again, but understood his point. The conversation quickly moved along, but it was swirling in my head today. This is what I talked with him about tonight. That we don't know how we are going to get along with our brothers or sisters. That I barely talk to my sister and we are different people. Doesn't mean she's bad or I am bad, just different. It is a gift when we truly enjoy the same things and play the same games with each other regardless of our abilities. And it's true.
I thought and imagined that our family would be "different" that our friends wouldn't want to be with us anymore, because our kids weren't like theirs. I know it sounds ridiculous to our friends. Because it is ridiculous. I wish I could take a mama with the news of any baby with struggles or differences and show her our life. Our wonderful, beautiful life. It's not because it's easy. It's not because we are amazing. It's a choice. Happiness and love are choices and actions. We live. All of us. All of the time. We have fun and welcome all people into our home. And if you were invited your would see we are a family, complicated, messy and so full of love (and stiff drinks!). This life is all I dreamed it to be, the only missing piece is the rest of the world. So, dreaming big and starting small with all of you.
So, yeah, brush your teeth if you want to keep them and love people for who they are and what they offer this world. We are all just trying our best.